I’ve written a lot about the benefits of walking, and why we need to stop negatively labelling it as wandering, when it is a person with dementia who is walking! The following infographic is an excellent simple outline of why we should all be walking more, and every day, which I found on Facebook. The…
If it is within your reach financially to donate to Dementia Alliance International to assist us with funds to support as many people with dementia and their care partners as possible to be able to attend the ADI Conference in Chicago, I would personally really appreciate it. Many of my friends have already donated to…
Recently I was chatting with one of my online friends with dementia in Canada, Christine T. She lives alone, so doesn’t have the luxury of the support of a partner to be her BUB. My BUB is at work every day, so in that time I’m doing it alone too. Anyway, Christine and I both…
Life with dementia is one very tough gig. Being a dementia activist though, makes a diagnosis of dementia seem easy! There are 24 hours in every day, and for about 18 of them, when I’m awake, I am constantly thinking of giving up my activism and even the more moderate advocacy. Thankfully people do appreciate…
I’ve written a lot before today about death and dying, and grief, illness and loss and even betrayal, and posted a fabulous TED Talk a few years ago titled “Prepare for a good end of life”. I’ve attended to my Advanced care directives ( https://www.youtube.com/watch?v=Yp4Z2OoSde0 ) and other end of life matters, and even once…
Jessica Young who is a PhD student at Flinders University and Western University in Canada wrote a review of my first dementia book, and then asked me to respond to her review. The review was published recently in the Dementia Journal, was also published here today, and on her blog, as we have both been granted permission from…
These days, ‘Wally’ can be anywhere, and by Wally, I mean things like my files or a book, or my jewellery! My belongings seem to have developed identities of their own, and have even become quite mobile, as more often, I cannot find my ‘things’ anywhere! Thankfully, my phone can be found by some clever…
“An interesting observation on survival – nature is always a good teacher, our part is to pay attention… “A wolf pack on the move : · The first 3 are the old or sick, they give the pace to the entire pack. If it was the other way round, they would be left behind, losing…
I’ll continue to “PressForProgress for equal rights for all people with dementia (dementia also affects more women than men) I’ll continue to “PressForProgress for equal pay for women I’ll continue to “PressForProgress for equal numbers of woman as men in leadership roles I’ll continue to “PressForProgress against ALL forms…
The last few weeks I had been feeling quite stressed about having too many things to do, and especially about the truly desperate state of my office and email ‘situation’. I can no longer file things, as the acquired dyslexia is much worse, and therefore, if I do, I can never find anything afterwards. The…
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