It was recently Father’s Day in Australia, which for me, is possibly the the equal worst day of the year. For those of us who’s parents are or were abusive, it is not a great day. It actually hurts when the loving relationships are so publicly highlighted as if all relationships between children and parents…
During Dementia Awareness Month 2020, I’ve been publishing a blog every day, and trying to cover some different topics. Some are quite contentious, but I believe need to be talked about. The status quo in advocacy is driving me a little crazy… Anyway my daily blogging is unlikely to make a difference, but it at…
“Dementia care is caring for people Who often do not know they need care, And don’t want to be in care; No wonder they may become angry and upset.” Author: Kate Swaffer © 2012 #BanBPSD Also published in: Love Life Loss, A roller-coaster of poetry (2012) Graphic Print Group, Richmond, SA and “What the hell…
Following on from a recent blog about Dementia Risk Reduction, I received the comment below, which is being highlighted today, as this is such an important issue. I understand the necessity from a personal and public health strategy perpective for us to engage in risk reduction strategies. I also understand that we humans don’t always…
It is day 4 of Dementia Awareness Month (in Australia!) #DAM2020, and I thought it might be useful to focus on the factors that researchers now know reduce the risk of getting dementia today. The one ‘risk’ of doing this, is that people with dementia may start to be blamed for getting dementia, and this…
It is Day 3 of Dementia Awareness Month here, #DAM2020 and my blog is a recording of a presentation given by Assoc/Professor Lee-Fay Low on 15 August 2019. Lee-Fay is a friend and colleague helping to reframe dementia. I only saw the recording recently, and it’s given me much to think about, and to do!…
Apologies this post was accidentally published yesterday, when is was meant for today, day 2 of #DAM2020! Arrgghhhh! It is easy to hit the wrong button! Anyway, onto much more important things. The need for everyone to rethink dementia continues to be highlighted in the many stories of neglect, abuse, restraint and deaths in Residential…
Early today I joined a Twitter chat for the release of a book by my good friend Dr. Shibley Rahman @ShibleyRahman titled Essentials of Delirium. It was hosted by another friend in the UK, @DiverseAlz and if you are on twitter, you jcan follow the feed via the hashtags #DeliriumEs and #DiverseAlz To kick off…
Following my blog yesterday, Looking back, to move forward, I felt it important to highlight one comment made, as a separate blog. I had replied by saying I was saddened by such a comment, but not surprised. “A prominent ER doctor addressed an online group I was in developing guidelines for people with dementia admitted…
This blog started 9 years ago, and so I decided to review and add here, one post per year from August, to see what, if anything has changed, and also how my writing and thinking has evolved. My aim is to provide an authentic voice, to be a true advocate, and not to be persuaded…
You are invited register for the August 2020 DAI “Meeting Of The Minds” Webinar”, What People Living with Dementia Teach Us About Our Shared Humanity presented by Professor Emeritus Steven Sabat. Wednesday, August 26, 2020 (USA/CA/UK/EU) Thursday, August 27, 2020 (AU/NZ/ASIA) Please note: this is one event, set in a number of different time zones. Register here… About the…
A troubled past in the multimillion-dollar nursing home empire of Epping Gardens “The company that owns the coronavirus-plagued Epping Gardens aged care home in Melbourne also runs another home in Sydney which scored zero out of eight in a quality assessment last year.” Read the full article here… Sarah Holland said it for me. Shocking.
First published on my Living Beyond Dementia™️ website June 30, 2018. Anyone who follows this site knows I have been a believer in Bredesen’s Protocol, although I do have some healthy scepticism as well! In saying that, I believe if we don’t view dementia as a chronic disease, which brings with it acquired cognitive disabilities,…
I will only feel like I’ve achieved my advocacy goals when we are all FREE. Free: – from stigma for having dementia – from discrimination due to dementia – from confinement in nursing homes – from segregation in secure dementia units – from chemical restraint – from physical restraint – from Prescribed Disengagement®️ – from…
I’ve been around mean people and they’re not pleasant to be around, not do I want to be like them. Thankfully, or hopefully, I have learned to move away from the truly unkind people who have consistently bullied, abused, harmed or betrayed me… and I will continue to question most things!
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