This quote is very pertinent to anyone who has experienced long term chronic illness, particularly those with an illness that is not ‘easy to see’ or ‘easy to diagnose’. A broken leg or hip is obvious, but for so many of us, many of our symptoms are invisible, and the social context is completely ignored.…
A few years ago I wrote the following blog about what it feel like it feels like to have dementia. I have followed it today with what I have found to be some of the gifts of dementia, also written about previously in a number of posts, but also inspired by another online friend. Thankfully,…
It’s definitely been a while since I blogged here, but today, my blog is for all dog lovers! I follow a number of other blogs, and today I am highlighting one written [sic] by a dog! He is a working dog, and works for a prominent Australian, Graeme Innes AM. Graeme Innes “is an Australian company…
The thoughtful silence Of the autumn morning Slowing down… As the noises of life Are gathering speed Bird songs spring to life And gentle winds move the trees Yes, pondering on how to silence The ruckus inside my head Still unable to take it away Unsure how to lessen the noise Or turn it off…
The use of ANY restraints in dementia care, including physical or chemical, is starting to be seen by now by many including health care professionals and not just a few of us living with dementia or supporting someone with dementia, as a major breach of human rights. Locking people in secure units, is for other…
As those of you know have been following my blog for a long time, it used to be a daily blog, and last week, at an author event I spoke at in small country town called Two Wells where Annabel Crabb comes from, I met the wonderful Carolyn Cordon, a fellow poet and someone I have known…
Thanks to my DAI members and family for supporting this webinar. If you haven’t seen it, please watch, listen, and learn.
No amount of pondering Will ever help me find the words For the malicious unkindness of a few others… Nor the incredible gratefulness For the love of so very many Truly ‘close friends and family’. Thank you.
‘What the hell happened to my brain? Living beyond dementia’ Review published by Professor of Dementia Research, Faculty of Medicine & Health Sciences, Nottingham University on 30 December, 2016. Reproduced here, with permission. “Kate Swaffer is phenomenal. Diagnosed with frontotemporal dementia before the age of 50, she has been a leading advocate for dementia ever since, with…
I am no longer an advocate for myself or for others diagnosed with dementia. I am no longer an activist for myself or for others diagnosed with dementia. I am slowly getting stronger again… and I am now a warrior.
Living beyond dementia Is tough And sometimes even fun But many days are torture Days spent finding files Many more losing them Only functioning at all Because of the support of our BUB’s More than occasionally We want to give up paddling… And, it seems, one or two might prefer I just stayed home and died… Finding…
Thanks to Ita Buttrose, AO, OBE, an Australian journalist, businesswoman, television personality and author, for inviting me to be interviewed on The Studio. Ita was the Australian Of The Year in 2013., and she is a true media Icon, an inspiration for all women of all ages, and a woman who I feel lucky enough…
It was a privilege to be interviewed on ABC Breakfast by Paul Kennedy and Ali More, on 10 January 2017 in Melbourne. Almost better than that, was a family friend Jo Sullivan, a sports journalist who works there, who surprised me by escorting me to the studio (I had forgotten he worked there!!)! This is the interview:…
It is already mid January 2017, and I’ve not yet posted a blog, so am hoping to rectify the today! I started this ages ago, but have had trouble paddling since December so have not achieved very much at all. Anyway, it may be worth looking back and reflecting as we prepare for yet another year. The years…
Obviously, I rarely blog here very often any more, as I have taken the activities of Living beyond dementia to a whole new level! In fact, I have not written even a monthly blog on that site or on my recipe blog since August!! In October, I posted four blogs here, and in November, so far, only…
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