Too often I watch an interview of a care partner about life supporting someone with dementia, and they speak with incredible love, but often in paternalistic and patronising ways. In this way they subconsciously continue the myth that people with dementia are the ‘real sufferers’. What they are really expressing, in my mind, is their…
On Monday night this week, there was a television program in Australia (4 Corners) on the ABC which featured three couples with dementia. I had a reasonable idea it would be full of suffering, although it showed a lot of love and living as well as humanly possible as well, but from all accounts, it…
It’s been an early start today With a fun DAI members meeting and cafe But as is often the case these days A lot more things are hiding. Curiously, I’ve just discovered I had put the dirty clothes Into the kitchen bin And I still cannot find my multi focal glasses. They have obviously gone…
Quora is a site I follow, and when I have time, also read the occasional article there if it is topical or seems interesting. However, since being lied about by people (no, not ‘close friends and family’ as they claimed to be) who I believe to be narcissists, I’ve been taking more notice of the…
Someone just reposted this article on Facebook, and mostly because our amazing wonder-cat is Mr Boris is actually featured in the article and this photo, I am posting it here! In the article my Neuro-physiotherapist, Associate Professor (at the time of the article, a PhD Dr) James Mcloughlin said: “We’ve got pretty good evidence to show…
Hello Sunday! Earlier this morning someone posted the video below on Facebook, and it made me cry, but it also helped me find the strength to stop feeling annoyed about some of the challenges of dementia,and get back to working on my paddling! Watching it also made me even more aspirational in my dream that…
Seneca on Grief and the Key to Resilience in the Face of Loss: An Extraordinary Letter to His Mother I’m a bit slower off the mark than I once was, and although I thought my feelings these last few months were mostly based on betrayal, and the anger and extreme sadness caused by the lies…
Those of you who follow me here will know I recently had an issue with the cover of my book in the German translation being published by hogrefe, What the hell happened to my brain?: Living beyond dementia. I am more than delighted to say again it has been resolved, but I’d like to comment further,…
In 2017, speaking also means email, texting, sending messages via Messenger, Twitter, Facebook or another form of social media. It seems though, that hidden behind a screen, people have forgotten to think before they speak (write), especially about whether what they say is kind. Part of my stress this year has been due to extreme…
Many who have been reading my blogs for a few years, or are connected on social media with me, will know I have a friend in the UK who was a clinical neurologist, and who is now also an eminent academic and author. Like me, he can be a tad short tempered, and does not…
Following yesterdays SA update, here is a brief national update from ProBono Australia who reported on the NDIS late last week, written by Rachel McFadden (29 July 2017); NDIS Having a Life Changing Impact Despite First Year ‘Teething Problems’ On the eve of the first anniversary of the Australia-wide rollout of the National Disability Insurance Scheme…
This week, I thought I’d begin with news about the NDIS in South Australia, partly because it was celebrated by many of us with the Dignity Party SA on the weekend, with a giant NDIS celebration cake (gluten free, although definitely not sugar free), as pictured here! The media release was sent out Friday about it,…
It’s a bit odd to find things out on social media about yourself, even good things, although also a great delight if it is something positive! I discovered via Twitter early today this blog has been listed in the Top 10 Ageing blogs by an organisation called Kindly Care, and hence I’d like to thank…
You may be wondering what I mean by that quote? Well, to start with I can most certainly guarantee no-one with dementia ‘lives well’ or even ‘beyond dementia’ all of the time. For that matter, with or without dementia, not everyone lives well all of the time ! But people with dementia appearing to live…
On May 29 this year, the World Health Organisation’s Global Action Plan on the Public Health Response to Dementia 2017-2025 was unanimously adopted. The following is the announcement made in Geneva: Delegates at the World Health Assembly have reached new agreements on dementia; immunization; refugee and migrant health; substandard and falsified medical products, and the world…
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