Many of us with dementia really dislike the term respite; we also dislike the terms Day Centre or Day Care as that’s the place we took our three-year olds. Anyway, a friend Sarah Yeates and volunteer of DAI who is also the manager of the Caledonia Dementia Care recently asked me what I thought would be…
Yesterday I received an email from the University of Wollongong with the following media release about the ePAT App has now received regulatory clearance in Australia and for the European Economic Area (EAA). Below is the announcement that was placed on the ASX yesterday. As one of more than 50 million people living with dementia…
Well, I’ve realised my husband is right and I am probably an idiot as I book in too many meetings when we travel. Below is an updated itinerary as of today, as some meetings changed overnight, but who knows, if I can squeeze any more in, I’m sure I will find a way! We are…
Whilst this blog is not exactly a discussion on the new narrative of dementia, which is my current my #hottopic, this YouTube video sent to me by The Amazing Susan and makes it reasonably clear what I mean… and although it gave me a good laugh, it hits home exactly about what has been annoying…
Ok, so I know the word bugger Could be seen as crude But frankly, it is how I feel Yesterday I talked to my BUB Then I wondered where he was So I was frantically looking for him In our own home He was nowhere to be found So I called him on his mobile…
Too often I watch an interview of a care partner about life supporting someone with dementia, and they speak with incredible love, but often in paternalistic and patronising ways. In this way they subconsciously continue the myth that people with dementia are the ‘real sufferers’. What they are really expressing, in my mind, is their…
On Monday night this week, there was a television program in Australia (4 Corners) on the ABC which featured three couples with dementia. I had a reasonable idea it would be full of suffering, although it showed a lot of love and living as well as humanly possible as well, but from all accounts, it…
Someone just reposted this article on Facebook, and mostly because our amazing wonder-cat is Mr Boris is actually featured in the article and this photo, I am posting it here! In the article my Neuro-physiotherapist, Associate Professor (at the time of the article, a PhD Dr) James Mcloughlin said: “We’ve got pretty good evidence to show…
Hello Sunday! Earlier this morning someone posted the video below on Facebook, and it made me cry, but it also helped me find the strength to stop feeling annoyed about some of the challenges of dementia,and get back to working on my paddling! Watching it also made me even more aspirational in my dream that…
Seneca on Grief and the Key to Resilience in the Face of Loss: An Extraordinary Letter to His Mother I’m a bit slower off the mark than I once was, and although I thought my feelings these last few months were mostly based on betrayal, and the anger and extreme sadness caused by the lies…
Those of you who follow me here will know I recently had an issue with the cover of my book in the German translation being published by hogrefe, What the hell happened to my brain?: Living beyond dementia. I am more than delighted to say again it has been resolved, but I’d like to comment further,…
In 2017, speaking also means email, texting, sending messages via Messenger, Twitter, Facebook or another form of social media. It seems though, that hidden behind a screen, people have forgotten to think before they speak (write), especially about whether what they say is kind. Part of my stress this year has been due to extreme…
Following yesterdays SA update, here is a brief national update from ProBono Australia who reported on the NDIS late last week, written by Rachel McFadden (29 July 2017); NDIS Having a Life Changing Impact Despite First Year ‘Teething Problems’ On the eve of the first anniversary of the Australia-wide rollout of the National Disability Insurance Scheme…
This week, I thought I’d begin with news about the NDIS in South Australia, partly because it was celebrated by many of us with the Dignity Party SA on the weekend, with a giant NDIS celebration cake (gluten free, although definitely not sugar free), as pictured here! The media release was sent out Friday about it,…
It’s a bit odd to find things out on social media about yourself, even good things, although also a great delight if it is something positive! I discovered via Twitter early today this blog has been listed in the Top 10 Ageing blogs by an organisation called Kindly Care, and hence I’d like to thank…
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